4 years, 3 months, and 2 weeks of therapy = a whole lot of tears
What other people say about Veronika….Wednesday, January 5, 2011
What other People Say About Veronika Last year I came across a resource called “What I’d Like You to Know About Me” or “About Me” for short. I was offered to opportunity to create one
To google or not to google…Wednesday, January 12, 2011
To Google or not to Google…. To Google or not to Google?, That is the question…..Last October when we saw Veronika’s paediatrician, I asked if we could see a baby neurologist. I was shocked when
Tuesday, January 25, 2011
Stop yelling at me! Another busy couple of weeks have passed. We are back to the normal 4-5 Doctor and allied health appointments a week, so there is still never a dull moment in the
Wednesday, January 26, 2011
Maybe some answers tomorrow!?!? Tomorrow we are off to see Veronikas occupational therapist early in the afternoon, then after that we are off to see the pediatrician. Maybe we might get some answers about the
Friday, February 11, 2011
My Little Climber….. Miss Veronika has learnt to climb! She climbed onto the couch all by herself in late January. I was and still am one very HAPPY Mummy. I have to admit it was
Wednesday, February 16, 2011
Back to the normal routine….. Well our boys Jordan 8 and Jakob 6, have been back at school for 2 weeks, which means that Veronika and I have gotten back into the swing of the
Sunday, February 20, 2011
My Little Project…. When your baby is 1 week old, and she has her 1st MRI and the results aren’t what you thought you would ever hear, let alone something you never want to hear……Veronika
Thursday, February 24, 2011
Thankyou, Thankyou, Thankyou….No really THANKYOU. Oh my goodness, What a week. What started our as my latest blog post, about my little project, to get Veronika a hydrotherapy spa, to give her every chance to
4 years
3 months
and 2 weeks ago
we began a roller coaster of therapy sessions….
why
as most of you know, Veronika suffered a massive bilateral stroke before she was born,
it SHOULD of killed her, we were told, it would have killed any adult…..
Veronika had her 1st brain MRI when she was only a week old….
and the results were devastating….
“Veronika has an injury to the area of her brain that we believe will affect her movement down the left side of her body, and she will NEVER walk”….
the conversation I had that day with the NICU doctor, is as clear in my mind as if it was only yesterday….
I was shattered, it wasnt FAIR that Veronika had not only Down Syndrome, and a congenital heart defect, that we were told needed open heart surgery to repair, along with severe hydrocephalus(swelling around the brain) that they were trying to decide if she needed urgent brain surgery to insert a shunt to drain the fluid….
now she was never going to walk, and Veronika was only a week old….
the physio had already started….the physios came and saw Veronika every day she was in hospital when she was born(almost 6 weeks)…
and the physio continued….and continued
after I was given the devastating news, I cried for 2 weeks….
then decided Veronika would walk….
and my goal, she would walk into kinder on her 1st day of school….
…yesterday we went to see Veronika private physiotherapist Lewina,
Lewina’s goal for the therapy session was for Veronika to sit on the chair, stand up, stop and TAKE A STEP….
6 weeks ago when we saw Lewina for Veronika’s therapy session, Veronika could manage the sit, and the stand….
so this was a HUGE goal…. one that Lewina and I both BELIEVED to be possible…
there were a whole lot of tears 4 years, 3 months, and 2 weeks ago…
and yesterday there were a whole lot more….but yesterday they were HAPPY tears..
