Never giving up

Siblings…

26th January 2016

Siblings…..

Having a sister that has high care needs means that a lot of my time is taken helping Veronika….today I spent over 2 hours(over the day) sitting, helping Veronika drink from her cut out cup to try and get more fluid into her….this is along with the usual therapy we do each day, plus all the ‘usual things’ with being a mum.

For me it’s important to grab some time with Veronika’s brothers when I can….so tonight after dinner Jakob and I went out for a bike ride. I’m working on getting better at making time to do things with the boys, either individually or together….and this is one of my big personal goals for this year. Last year was incredibly tough with Veronika’s surgery and rehab, which meant Veronika and I were interstate for over 2 months, and when we were home it was incredibly difficult to get out.

So bring on more bike rides, more ‘time out’ with Veronika’s brothers….especially before they get to the age where they don’t want to do anything with me!

‪#‎siblings‬ ‪#‎veronikawillwalk‬ ‪#‎qualitytime‬ ‪#‎bikeride‬ ‪#‎timeout‬

Veronika Will Walk, our Ups and Downs with Cerebral Palsy's photo.

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2 days ago

Veronika. Our Ups and Downs with Cerebral Palsy

Perfect weather for an autumn walk this afternoon!

#veronika #autumn #walk #7km #sunshine #downsyndrome #cerebralpalsy #hemiplegia #downsyndrome #autism #epilepsy #vitaminD
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On Sunday Veronika and I went for a walk after bowling....the day she walked 230 meters 👍

I was walking along just behind Veronika looking at her gait(the way she walks). Veronika didn’t have her second skin on, her body posture support suit because it was drying after being washed.

That was the moment I realised how much of a difference her second skin makes to her gait/walking.

I filmed Veronika for a while to show her physio(and the rest of Veronika’s team) next time we see him.

Yesterday we went for a wander after speech therapy, and Veronika had her second skin on.

This video has Veronika walking on Sunday at the beginning without her suit, and then with the suit Monday.

The video doesn’t do it justice how much smoother Veronika’s gait/walking is in her second skin....but hopefully you get a bit of the picture how this supports Veronika and the functional impact it’s having on Veronika.

www.secondskin.com.au/products/splintsneurological

#veronika #walking #secondskin #gait #posture #physio #hemiplegia #downsyndrome #autism #epilepsy #cerebralpalsy #trisomy21 #NDIS
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That time Miss Veronika was on the front page of the Sunday Tasmanian......and she is still smashing goals 💥 ...

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