Never giving up

Siblings…

26th January 2016

Siblings…..

Having a sister that has high care needs means that a lot of my time is taken helping Veronika….today I spent over 2 hours(over the day) sitting, helping Veronika drink from her cut out cup to try and get more fluid into her….this is along with the usual therapy we do each day, plus all the ‘usual things’ with being a mum.

For me it’s important to grab some time with Veronika’s brothers when I can….so tonight after dinner Jakob and I went out for a bike ride. I’m working on getting better at making time to do things with the boys, either individually or together….and this is one of my big personal goals for this year. Last year was incredibly tough with Veronika’s surgery and rehab, which meant Veronika and I were interstate for over 2 months, and when we were home it was incredibly difficult to get out.

So bring on more bike rides, more ‘time out’ with Veronika’s brothers….especially before they get to the age where they don’t want to do anything with me!

‪#‎siblings‬ ‪#‎veronikawillwalk‬ ‪#‎qualitytime‬ ‪#‎bikeride‬ ‪#‎timeout‬

Veronika Will Walk, our Ups and Downs with Cerebral Palsy's photo.

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One of Veronikas happy places!
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House of Anvers chocolates.
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Anvers chocolate icecream plus a chocolate butterfly and a hot chocolate for Mum.
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#anvers #chocolate #icecream #butterfly #cerebralpalsy #hemiplegia #downsyndrome #trisomy21 #autism #epilepsy #happyplace @ House Of Anvers
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Blueberry picking at Old Beach Berries this afternoon.

Veronika loved walking up and down the rows of blueberry bushes, while she decided where she was going to stop and pick some blueberries.

Veronika sampled a couple of blueberries as she picked them. Which is awesome as she won’t eat them any other time!

#veronika #blueberries #oldbeachberries
#trisomy21 #downsyndrome #cerebralpalsy #hemiplegia #epilepsy #autism #grossmotorskills #finemotorskills #physio #OT #princesswarrior
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Can anyone guess what else Veronika did this afternoon (before the storm)?

*the colour dripping from her chin is a clue*

#veronika #trisomy21 #downsyndrome #cerebralpalsy #hemiplegia #autism #epilepsy
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