15th August 2015…severe central sleep apnea
What other people say about Veronika….Wednesday, January 5, 2011
What other People Say About Veronika Last year I came across a resource called “What I’d Like You to Know About Me” or “About Me” for short. I was offered to opportunity to create one
To google or not to google…Wednesday, January 12, 2011
To Google or not to Google…. To Google or not to Google?, That is the question…..Last October when we saw Veronika’s paediatrician, I asked if we could see a baby neurologist. I was shocked when
Tuesday, January 25, 2011
Stop yelling at me! Another busy couple of weeks have passed. We are back to the normal 4-5 Doctor and allied health appointments a week, so there is still never a dull moment in the
Wednesday, January 26, 2011
Maybe some answers tomorrow!?!? Tomorrow we are off to see Veronikas occupational therapist early in the afternoon, then after that we are off to see the pediatrician. Maybe we might get some answers about the
Friday, February 11, 2011
My Little Climber….. Miss Veronika has learnt to climb! She climbed onto the couch all by herself in late January. I was and still am one very HAPPY Mummy. I have to admit it was
Wednesday, February 16, 2011
Back to the normal routine….. Well our boys Jordan 8 and Jakob 6, have been back at school for 2 weeks, which means that Veronika and I have gotten back into the swing of the
Sunday, February 20, 2011
My Little Project…. When your baby is 1 week old, and she has her 1st MRI and the results aren’t what you thought you would ever hear, let alone something you never want to hear……Veronika
Thursday, February 24, 2011
Thankyou, Thankyou, Thankyou….No really THANKYOU. Oh my goodness, What a week. What started our as my latest blog post, about my little project, to get Veronika a hydrotherapy spa, to give her every chance to
When Veronika was admitted to Monash Childrens hospital for her hip rehab, I was asked if Veronika had sleep apnea(as apnea’s can often happen in children with Down syndrome). I said I wasn’t convinced Veronika did have sleep apnea but at the same time I wasn’t convinced she didn’t . So the plan was to do a basic pulse oximetry overnight the second week Veronika was at Monash to ‘see what happens when she goes to sleep’. As soon as she went to sleep Veronika desat-ed and wasput on oxygen for the night to maintain her oxygen levels. In the morning the rehab doctor came to see us and she then asked the respiratory specialist to come see Veronika. Within an hour he was there and he decided to book Veronika in for a sleep study while we were there.
The sleep study was done a couple of nights later and the results weren’t quite what we expected.
Veronika was diagnosed with sleep apnea.
There are 2 types of sleep apnea, obstructive and Central.
The guess was if Veronika had apnea it would most likely be obstructive due to her trisomy 21, and removing tonsils and adenoids usually resolves this apnea….however we all know our girl writes her own book.
Veronika has central sleep apnea. Her brain doesn’t always tell her to breath when she’s asleep, and as a result she stops breathing multiple times an hour when she’s asleep.
So we now have a new night time routine, putting a nasal cannula on and giving her oxygen overnight. This is taking our girl some time to adjust to as she doesn’t like them. She now ‘tolerates’ having them put on, but is pulling them off multiple times a night. Im hoping/praying that my girl gets used to sleeping with the oxygen and starts sleeping better. If she sleeps better, doesn’t have apneas causing her to wake often, then the flow on effect will be amazing. Not just for Veronika but me too…..if my girl can finally sleep better that *should* mean I will too.
