my girl and this cup…
What other people say about Veronika….Wednesday, January 5, 2011
What other People Say About Veronika Last year I came across a resource called “What I’d Like You to Know About Me” or “About Me” for short. I was offered to opportunity to create one
To google or not to google…Wednesday, January 12, 2011
To Google or not to Google…. To Google or not to Google?, That is the question…..Last October when we saw Veronika’s paediatrician, I asked if we could see a baby neurologist. I was shocked when
Tuesday, January 25, 2011
Stop yelling at me! Another busy couple of weeks have passed. We are back to the normal 4-5 Doctor and allied health appointments a week, so there is still never a dull moment in the
Wednesday, January 26, 2011
Maybe some answers tomorrow!?!? Tomorrow we are off to see Veronikas occupational therapist early in the afternoon, then after that we are off to see the pediatrician. Maybe we might get some answers about the
Friday, February 11, 2011
My Little Climber….. Miss Veronika has learnt to climb! She climbed onto the couch all by herself in late January. I was and still am one very HAPPY Mummy. I have to admit it was
Wednesday, February 16, 2011
Back to the normal routine….. Well our boys Jordan 8 and Jakob 6, have been back at school for 2 weeks, which means that Veronika and I have gotten back into the swing of the
Sunday, February 20, 2011
My Little Project…. When your baby is 1 week old, and she has her 1st MRI and the results aren’t what you thought you would ever hear, let alone something you never want to hear……Veronika
Thursday, February 24, 2011
Thankyou, Thankyou, Thankyou….No really THANKYOU. Oh my goodness, What a week. What started our as my latest blog post, about my little project, to get Veronika a hydrotherapy spa, to give her every chance to
My girl and this cup…..
At 7 years and 8 months old Veronika is getting the hang of drinking thickened fluid out of this cut out cup.
We have spent years(and lots of dollars)with therapists and every different type of cup, sipper cup, bottle, and straw made to try to get her to drink out of something other than her bottle and teat.
From when Veronika was a newborn in special care and we were trying to her her off the nasal gastric tube feeds, we had to use a special bottle called a haberman feeder. It was the only thing she could manage. She used that for months before we were able to transition Veronika to a regular teat.
Having dysphagia makes it hard for her, but I can finally see a light at the end of the tunnel.
Veronika hasn’t had a bottle for 7 days….a whole week!!!!
I’m spending an hour and a half to 2 hours a day sitting holding the cup for her to get enough fluids into her to keep her hydrated as she can’t manage to hold the cup yet herself, but I’m just so excited to finally be getting somewhere with her drinking.
It’s a huge milestone for our girl that we have been working on for years 😊🌟
I must say a huge THANKYOU to the gorgeous ladies Sue and Priscilla atMedela Australia for supporting Veronika on her journey…we have been buying teats in bulk at a discount from Medela for years because Veronika going through so many.
#veronikawillwalk #veronikawilldrink #medelaaustralia #cerebralpalsy#trisomy21 #dysphagia #peptijuniorformula
