Where’s Wally or Wonder Woman?
What other people say about Veronika….Wednesday, January 5, 2011
What other People Say About Veronika Last year I came across a resource called “What I’d Like You to Know About Me” or “About Me” for short. I was offered to opportunity to create one
To google or not to google…Wednesday, January 12, 2011
To Google or not to Google…. To Google or not to Google?, That is the question…..Last October when we saw Veronika’s paediatrician, I asked if we could see a baby neurologist. I was shocked when
Tuesday, January 25, 2011
Stop yelling at me! Another busy couple of weeks have passed. We are back to the normal 4-5 Doctor and allied health appointments a week, so there is still never a dull moment in the
Wednesday, January 26, 2011
Maybe some answers tomorrow!?!? Tomorrow we are off to see Veronikas occupational therapist early in the afternoon, then after that we are off to see the pediatrician. Maybe we might get some answers about the
Friday, February 11, 2011
My Little Climber….. Miss Veronika has learnt to climb! She climbed onto the couch all by herself in late January. I was and still am one very HAPPY Mummy. I have to admit it was
Wednesday, February 16, 2011
Back to the normal routine….. Well our boys Jordan 8 and Jakob 6, have been back at school for 2 weeks, which means that Veronika and I have gotten back into the swing of the
Sunday, February 20, 2011
My Little Project…. When your baby is 1 week old, and she has her 1st MRI and the results aren’t what you thought you would ever hear, let alone something you never want to hear……Veronika
Thursday, February 24, 2011
Thankyou, Thankyou, Thankyou….No really THANKYOU. Oh my goodness, What a week. What started our as my latest blog post, about my little project, to get Veronika a hydrotherapy spa, to give her every chance to
Where’s Wally or Wonder Woman?
In October I was tossing up if I should wear my Where’s Wally or Wonder Woman top for a meeting at our local NDIS office.
This decision was for a meeting at the NDIS office.
Where’s Wally….because navigating your way is kind of like looking for Wally
Wonder Woman…..because navigating the NDIS can require super hero expertise.
In the end I decided it may be a better idea to go with a unicorn theme because really anything is possible when you believe. I wore my best unicorn skirt.
The back story to this
Veronika has been a participant of the NDIS since June 2017. Veronika’s initial NDIS plan was inadequate to meet any of Veronika’s goals and it was sent straight back for review. The review was a very slow stressful drawn out process. Then finally in December 2017 after lodging an official complaint with the NDIS, writing to the Minister for Disability and engaging an advocate Veronika finally had a much more appropriate plan a week out from Chirstmas.
In July this year I had my first talk with Veronika’s NDIS LAC to begin to prepare for Veronika’s plan when her current plan would expire in September. We met a few times, and had many emails and phone conversations, before we had all we needed to lodge for Veronika’s new NDIS plan.
Veronika’s NDIS plan runs out
Veronika’s plan ran out in the middle of September…and her new plan was not done.
A week later with the support of our LAC an official complaint was lodged….it took a couple of weeks and then finally Veronika’s plan appeared in the portal. Except it was not even close to what I was hoping may be funded.
Our in home support hours were slashed
Therapy hours cut
Assistive Technology(equipment) not funded.
SO I contacted my advocate again. She asked me what I would like her to do for me. I said I would like you to ask the planner to meet with me to explain the gaps in Veronika’s plan.
A week later I met with the planner….*not in my Where’s Wally or Wonder Woman top*. I had my advocate and our NDIS LAC join me, and I explained why we had requested the things in Veronika’s plan review, which we had therapist reports to support, and how it all related back to the goals in Veronika’s NDIS plan.
The planner agreed to add things back into Veronika’s plan and told me she would aim to have it done by the end of October.
The end of October came
No new plan
The middle of November came
No new plan
Communications between the planner and I indicated that it would be done by the end of November
The end of November came
No new plan
Maybe I should of worn my Where’s Wally top….because I am still chasing that elusive NDIS plan.
I know Veronika is not the most important participant in the NDIS, but to me she is. I will continue to advocate.
#veronika #NDIS #plan #downsyndrome #trisomy21 #cerebralpalsy #hemiplegia #autism #epilepsy #sleepapnea #advocate
