Veronika Will Walk

22nd October 2015….Thankyou Oishi-M

Veronika says a huge THANKYOU to the team at Oishi-m for sending her a some Harem jeans to try, to see what the fit was like over her AFO’s. They…

19th October 2015….believe anything is possible

A year ago I was told my princess needed a surgery to reconstruct her hip, femur and pelvis after it started dislocating. At that appointment the orthopaedic surgeon said ‘realistically…

12th October 2015…never give up

My girl could only just stand up in the walking frame when she started her hip reconstruction rehab 2 weeks ago….2 weeks of intense rehab done at Monash children’s hospital…

8th October 2015…my doctor baked me muffins!

Veronika’s doctor made her muffins! The other day Veronika’s rehab doctor asked Veronika if there was anything else she wanted and Veronika signed cake. The doctor said she would make…

7th October 2015…World Cerebral Palsy Day

It’s world cerebral palsy day today……Miss Veronika showed everyone one the ward what’s she’s made of by doing not one but 2 laps of ward 42 north this afternoon…..mighty proud…

6th October 2015

My girl works so hard at everything she does. We were told ‘realistically Veronika would not walk again after her hip reconstruction’. I said to the ortho we were told…

3rd October 2015….Down Syndrome Awareness(acceptance) month

October is Down Syndrome Awareness month, I personally prefer Down Syndrome Acceptance Month….I think the greater population is ‘aware’ that there are people who have Down Syndrome….but there needs to…

29th September 2015….back at Monash Childrens for more rehab

We went for a walk to the local Coles supermarket in between Veronika’s therapy sessions today….was great to get out of the hospital for a walk and some sunshine…..even if…

9th September 2015…nasty chest infection

Miss Veronika has a nasty chest infection so she missed her athletics carnival for school today…..spent the day at home with Dad and enjoyed watching some of The Wiggles….apparently this…

4th September 2015….writing my name

Veronika went to a birthday party for her friend Ellie, and my girl wanted to write her name in the card…..usually Veronika writes her name as ‘V’ but we have…

19th August 2015 Vee

Veronika has been writing a ‘V’ for her name for a couple of years….we are now working on her recognising and writing ‘Vee’ for her name, because let’s face it…

17th August 2015…return to school

This afternoon I dropped Veronika to school for the first time after missing 16 weeks of school, she hasn’t been since before easter….it’s been a tough few months following her…

15th August 2015…severe central sleep apnea

When Veronika was admitted to Monash Childrens hospital for her hip rehab, I was asked if Veronika had sleep apnea(as apnea’s can often happen in children with Down syndrome). I…

14th August 2015…..bowling

Miss Veronika has started bowling on Friday afternoon with a couple of her friends. She was so excited this afternoons when I asked her if she would like to go…

30th July 2015….

3 and half months ago my amazing girl went into surgery…. I was told ‘realistically veronika would never walk again following surgery’ and to prepare myself for that. I always…

29th July 2015…..my girl is on the move again

Mid April hip reconstruction, femur cut in half and rotated before being pinned, pelvis had bone cut out, reshaped and tilted 3 months in a spica(plaster cast) Just over 2…

22nd July 2015

Enjoying a ‘Veronika friendly icecream’ after working hard during the morning of therapy.#veronikawillwalkagain #hipreconstruction #rehab#t21 #cerebralpalsy #icecream     Visit to the Starlight Children’s Foundation Australiaroom for some fun in…

20th July 2015….rehab at Monash Children’s Hospital

Back in mid April when Veronika had her hip reconstruction, the thought crossed my mind that she would have most of term 2 off school for recovery, and be well…

13th July 2015 and my spica is off…

Brave Miss Veronika had her spica off this morning and then went into a rhino brace. Her orthopaedic surgeon decided this could be done without an anaesthetic(which I was more…

11th July 2015….its almost time for the spica to come off

Just over 12 weeks since Veronika had her hip reconstructed…..2 more days and her spica(plaster) comes off…..and I have a feeling then the hard work will really begin.   12th…

25th June 2015….10 weeks post surgery

10 weeks post surgery, 10 weeks in plaster….10 weeks and my girl is back to her cheeky self …amazing, resilient, strong, determined ‪#‎veronikawillwalkagain‬ ‪#‎cheekygirl‬ ‪#‎hipreconstruction‬ ‪#‎T21‬‪#‎cerebralpalsy‬

18th June 2015…a reflection on the weeks since surgery

It’s been 9 long weeks since Veronika’s hip reconstruction…..9 weeks of challenges, complications, frustrations, exhaustion, moving Veronika to help minimise the pressure on her wound and prevent more skin breakdown,…

15th June 2015….spica change number 1

Love the arrow on the foot, this is the leg for examination under anaesthetic! Everything went well, always reassuring when your child’s orthopaedic surgeon says ‘I tried to dislocate her…

10th June 2105….pressure wound care

These are the supplies I have used over the last week for Veronika’s pressure wound care…..*touchwood* we are finally winning the pressure wound battle again. Daily dressing has been dropped…