Veronika Will Walk

21st April 2015

This morning we were asked if some medical students could do an exam with Veronika as the patient, the Paed doctor asked if we had done this before which of…

20th April 2015….a visit from a gorgeous friend Elsa

Veronika and I are so blessed to have so many people sending positive thoughts, messages, prayers, healing juju, text messages and phone calls during this challenging time on Veronika’s journey…

20th April 2015….adjusting the spica

Off to the plaster room this morning to have Veronika’s plaster adjusted where it was getting a bit tight. The lady explained to Veronika that she would use the saw…

19th April 2015…hip and chest Xray

Veronika’s had a much better day today thank goodness….24 hours ago she was looking like she was heading to being rather unwell. Veronika spent most of this morning sleeping. This…

6th April 2015…

Today I asked Veronika if she was going for a walk? She said ‘no’ I asked if she was going for a run? She said ‘yeh’ ‪#‎veronikawillrun‬ ‪#‎veronikawillwalk‬ ‪#‎nevergiveup‬ ‪#‎mymiracle‬‪#‎takethatdoctors‬!

Christmas 2015, this time of year is challenging

  I couldn’t even guess how many people have gone up to Veronika and myself in recent weeks, and asked Veronika what she would like for Christmas… ‘Have you seen…

Veronika’s return to full time school v’s therapy

Miss Veronika had a very busy week this week….this week was Veronika’s return to full time school as part of her transition back to school following her surgery way back…

I have learnt…

It was this day a year ago, the day before father’s day, that Veronika’s hip went from bad to really not good. We were at dancing and I noticed a…

I dont know how you do it…

‘I don’t know how you do it’ or ‘how do you do it?’ I have had this said to me many times over the last 7+ years, but the months since…

April 15th, 2015

How do you explain to your 6 year old what’s going to happen tomorrow morning the 16th April? This is something that I’ve spent a lot of time thinking about…

last day of prep 2014, some days are harder than others

Thursday 18th December was the last day of prep for Veronika and what an amazing year Veronika has had at school this year Veronika learnt to be an independent walker…

My Heart is now healed…have faith and believe

7th December 2014… The day Veronika was born we were told 1 in 4 babies with Down syndrome have are born with a congenital heart defect….so later that day Veronika…

to the people who think its ok to wave their accessible parking permit at me…

To the people who think its OK to wave their accessible parking permit at me, Veronika was issued with an accessible parking permit sometime between her 2nd and 3rd birthdays,…

…when I grow up…

when I grow up….. I want to be  Mum, and a full time carer for one of my children…. I can honestly say that the second part of that thought…

1

Its just not fair……it is what it is

There have been two times on this journey with Veronika that the phrase “its just not fair” has crossed my mind. The first time I thought “its not fair” was…

4

Veronika’s transition to school….’about me’ note

In 2012 we were working through transitioning Veronika from ECIS(early childhood intervention services) where she had been attending ‘school/playgroup’ since she was 7 weeks old. Part of that transition was…

Veronika has been fitted with her kiddieGAIT orthotics….

My girl really is AMAZING, yes I already knew but today she continued to make me so proud of her determination. A couple of months ago I wrote a blog…

the NDIS turns 1….’reasonable and necessary’

The National Disability Insurance Scheme(NDIS) trial turns 1 tomorrow….for our home state Tasmania it’s been rolled out for the 15-24 year old cohort. The federal government has begun tightening it’s…

5 star awards = Walk up to get a Principals Award

One thing I won’t ever get sick of, is hearing the excitement from the students, teachers, staff and parents at school….at Mondays assembly Veronika was presented with a Principals award…

Veronika Will Walk…

Veronika Will Walk… Just over 6 years ago  I was told Veronika would never walk, following her 1st MRI when she was a week old. 6 years ago I made…

finding Veronika’s voice….could it be an accent 1000?

Last year, when I had Veronika at one of her pediatrician appointments we were discussing Veronika’s communication methods. We started signing with Veronika when she was around 5 months old, and it…

Swim 321 for t21

This Friday is World Down Syndrome Day(WDSD)….World Down Syndrome Day is a global awareness day celebrated on 21st March every year. The date for WDSD being the 21st day of…

1

I hate Petechia…

The pathology request no parent of a child with trisomy 21(Down syndrome) wants to see with their child’s name on it.   Children with trisomy 21 are at an increased…

today I felt like I failed my daughter…

5 years and 4 months ago, at a routine 36 week into the pregnancy checkup my  world changed…. It was revealed our yet to be born baby had a severe…