I hate Petechia…
What other people say about Veronika….Wednesday, January 5, 2011
What other People Say About Veronika Last year I came across a resource called “What I’d Like You to Know About Me” or “About Me” for short. I was offered to opportunity to create one
To google or not to google…Wednesday, January 12, 2011
To Google or not to Google…. To Google or not to Google?, That is the question…..Last October when we saw Veronika’s paediatrician, I asked if we could see a baby neurologist. I was shocked when
Tuesday, January 25, 2011
Stop yelling at me! Another busy couple of weeks have passed. We are back to the normal 4-5 Doctor and allied health appointments a week, so there is still never a dull moment in the
Wednesday, January 26, 2011
Maybe some answers tomorrow!?!? Tomorrow we are off to see Veronikas occupational therapist early in the afternoon, then after that we are off to see the pediatrician. Maybe we might get some answers about the
Friday, February 11, 2011
My Little Climber….. Miss Veronika has learnt to climb! She climbed onto the couch all by herself in late January. I was and still am one very HAPPY Mummy. I have to admit it was
Wednesday, February 16, 2011
Back to the normal routine….. Well our boys Jordan 8 and Jakob 6, have been back at school for 2 weeks, which means that Veronika and I have gotten back into the swing of the
Sunday, February 20, 2011
My Little Project…. When your baby is 1 week old, and she has her 1st MRI and the results aren’t what you thought you would ever hear, let alone something you never want to hear……Veronika
Thursday, February 24, 2011
Thankyou, Thankyou, Thankyou….No really THANKYOU. Oh my goodness, What a week. What started our as my latest blog post, about my little project, to get Veronika a hydrotherapy spa, to give her every chance to
The pathology request no parent of a child with trisomy 21(Down syndrome) wants to see with their child’s name on it.
Children with trisomy 21 are at an increased risk for developing leukaemia than typically developing children….
and petechia ( http://en.wikipedia.org/wiki/Petechia ) in children with trisomy 21 can be a marker for leukaemia….
the last few days have been stressful to say the least, from when I first noticed a petechia spots on Veronika, through to today when we saw her pediatrician.
In between the 1st spots, to the paed appointment, Veronika has had 2 blood test, both of which came back with an abnormal white blood cell count.
but today I heard the best sentence from Veronika’s pediatrician I think she has ever said to me….
“Veronika doesn’t have cancer”
Even though she has an abnormal white blood cell count(low) it seems that this may ‘just be another one of Veronika writing her own book, not going by the book’ situations. Her platelet count is in the normal range, and the petechia spots have disappeared. She still has low white blood cells, and as the paed looked back over Veronika’s blood tests it appears that low white blood cell count, may just be how Veronika is. Which may help explain why Veronika has suffered with many infections over the years. Because her white blood cell count is low, thus she isn’t able to fight off infections.
I must also apologise to anyone who may of had a conversation with me over the last few days, if I appeared to be a bit vague(more so than usual) or a bit stressed. I hope you weren’t offended, but I had a lot on my mind.
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